Thursday we had yet another speech evaluation for Evan, this time here at Meadville Medical Center. Because his third birthday is rapidly approaching, it's crunch time in terms of therapy. We have just a few more weeks to figure out what our course of action will be once Ev's in-home therapy stops. As is tradition, I did my usual routine of getting nervous and keyed up and sick to my stomach, and we went in with brave faces and high hopes for some answers.
Mike and I were both impressed with the speech therapist that saw Evan. She seemed to understand our concerns and shared our views for how to best help him. She observed him and spoke with us at length about his health and communication history. And then she told us what we've been so afraid to say out loud. Evan has a speech disorder.
Evan has a speech disorder. It is a relief to say it--as much as you never want to say anything is wrong with your child, we've known things aren't right for a long time. It's scary, but it feels good to have a name for it finally.
It's not a delay, and it's not him being stubborn, and it's not a problem that will be fixed overnight. He has a speech disorder. The therapist wasn't sure if he has apraxia or a phonological disorder, but for right now we're calling it apraxia. Apraxia of speech is a deficit in the ability to plan the motor movements for speech--meaning Evan can't make his brain tell his mouth the right way to move to form a word. He knows and understands the word, and he wants to use the word to tell you something, but somehow he is unable to get the word out of his mouth. I cannot begin to imagine how frustrating this is for him.
So what do we do now? Once the paperwork goes through with our insurance, we'll be taking Evan to two weekly sessions at the hospital, in addition to his current therapy. Once his in-home therapy stops in January, he will continue on at the hospital and also join a special speech preschool here in town once a week. The therapy will be intense, and progress will likely be slow, but we're hopeful that we're finally on the right track to Evan's first words.
In the meantime, Ev has been picking up sign language like crazy. He already knows the signs for more, mine, all done, eat, drink, please, and train. He and I are learning together, and trying to get a large working sign vocabulary for him. It's fun, and he's doing really well. I'm very proud of his progress so far.